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Photo of Daniel, living with CPT II, a type of LC-FAOD

find support
in one location.

Patient support available for you

Ultragenyx is committed to patients with rare diseases, which is why we created UltraCare Patient Services for DOJOLVI—your guide throughout your treatment journey.

Our UltraCare Guides have varied backgrounds, including social workers, healthcare professionals, and patient advocates, and are ready to help you gain and maintain access to DOJOLVI.

UltraCare Guides can help you to:

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Understand your
insurance coverage

patient support icon

Utilize patient support program resources, including help with billing and coding

financial assistance icon

Find and navigate available financial assistance and patient assistance programs that can help to cover co-pay and other out-of-pocket expenses

personalized counseling icon

Start and stay on DOJOLVI treatment through personalized counseling and education based on the recommendations, advice, and prescription of your healthcare team

Take the first step

Step 1: Ask your healthcare
provider to fax your completed*
Start Form to 1-415-723-7474.


Step 2: Sign up by visiting UltraCare Patient Services or call 1-888-756-8657 to connect with our UltraCare Guides.

Visit UltraCare

*Please note that a completed form is required for patient enrollment.

Download DOJOLVI materials

Back-to-School
Checklist


A checklist to help you know what to discuss with your or your loved one’s healthcare team before each school year starts

DOJOLVI® (triheptanoin) Back-to-School Checklist

Download | Share

DOJOLVI
Brochure


Learn about LC-FAOD, DOJOLVI, and patient support available to you

DOJOLVI® (triheptanoin) Brochure

Download | Share

DOJOLVI
Dosing Guide


Information to discuss with your healthcare team on how to store, administer, and keep track of DOJOLVI doses

DOJOLVI™ (triheptanoin) Dosing Guide

Download | Share

Daily
Dosing Tracker


A tool you can use to keep track of your DOJOLVI doses and notes for your healthcare team

DOJOLVI™ (triheptanoin) Daily Dosing Tracker

Download | Share

UltraCare Patient
Resource Guide


An overview of the UltraCare Patient Services program and the resources available to you

UltraCare® Patient Resource Guide

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Materials Compatibility
Reference


A reference overview of materials that are compatible or incompatible to use with DOJOLVI

DOJOLVI Materials Compatibility Reference

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LC-FAOD Disease Monitoring
Program for Patients


Learn more about a long-term LC-FAOD observational study

Learn more about a long-term LC-FAOD observational study

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Descargar materiales de Dojolvi

Folleto
de DOJOLVI


Obtenga información sobre LC-FAOD, DOJOLVI y la asistencia al paciente disponible

Folleto de DOJOLVI® (triheptanoin)

Descargar | Compartir

Guía de dosificación
de DOJOLVI


Información sobre cómo almacenar, administrar y hacer un seguimiento de las dosis de DOJOLVI que puede conversar con su equipo de atención médica

Guía de dosificación de DOJOLVI® (triheptanoin)

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Guidance for Preparing DOJOLVI

DOJOLVI® (triheptanoin) Dosing Videos

These video segments demonstrate how to use the dosing components to prepare a DOJOLVI dose.

Watch Videos

Ver videos en Español.

Guidance for mixing DOJOLVI into foods

This video series will give a demonstration on how to thoroughly mix DOJOLVI with soft foods or drinks when taking orally. DOJOLVI should not be administered alone to avoid gastrointestinal upset.

Watch Videos

DOJOLVI® (triheptanoin) Mixing Videos

Stay Informed

Connect with us to get the latest information on LC-FAOD and/or DOJOLVI.

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By submitting this form, you agree to allow Ultragenyx and its agents to collect the information provided and to be contacted directly by an Ultragenyx representative. Your information will not be used for any other purpose than for a representative to respond to your information request or for us to send you other DOJOLVI updates if you have registered to receive them.

Ultragenyx will not sell, rent, or otherwise distribute your name and any personally identifiable information outside of Ultragenyx and its agents. Ultragenyx will only use your information in accordance with its Privacy Policy.

What is DOJOLVI?

DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

IMPORTANT SAFETY INFORMATION

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of DOJOLVI?

  • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC). Check the feeding tube to make sure it is working properly and not breaking down.
  • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
  • The most common side effects of DOJOLVI include:

These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

Please see full Prescribing Information, including Patient Information, for additional important safety information and instructions for use.

What is DOJOLVI?

DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

IMPORTANT SAFETY INFORMATION

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of DOJOLVI?

  • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC). Check the feeding tube to make sure it is working properly and not breaking down.
  • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
  • The most common side effects of DOJOLVI include:

These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

Please see full Prescribing Information, including Patient Information, for additional important safety information and instructions for use.