Our top priority is the health and safety of our community. Visit our COVID-19 information page to see how we're responding to the public health emergency.

This site uses cookies to provide you with a more responsive and personalized service. By clicking "Accept," you agree to the use of cookies on this site. Please read our Cookie Policy and Privacy Policy for more information on the use of cookies on this website.

    Photo of Daniel, living with CPT II, a type of LC-FAOD

    find support
    in one location.

    Patient support available for you

    Ultragenyx is committed to patients with rare diseases, which is why we created UltraCare Patient Services for DOJOLVI—your guide throughout your treatment journey.

    Our UltraCare Guides have varied backgrounds, including social workers, healthcare professionals, and patient advocates, and are ready to help you gain and maintain access to DOJOLVI.

    UltraCare Guides can help you to:

    insurance coverage icon

    Understand your
    insurance coverage

    patient support icon

    Utilize patient support program resources, including help with billing and coding

    financial assistance icon

    Find and navigate available financial assistance and patient assistance programs that can help to cover co-pay and other out-of-pocket expenses

    personalized counseling icon

    Start and stay on DOJOLVI treatment through personalized counseling and education based on the recommendations, advice, and prescription of your healthcare team

    Take the first step

    Step 1: Ask your healthcare
    provider to fax your completed*
    Start Form to 1-415-723-7474.

    Step 2: Sign up by visiting UltraCare Patient Services or call 1-888-756-8657 to connect with our UltraCare Guides.

    Visit UltraCare

    *Please note that a completed form is required for patient enrollment.

    Download DOJOLVI materials

    DOJOLVI
    Brochure

    Learn about LC-FAOD, DOJOLVI, and patient support available to you

    DOJOLVI® (triheptanoin) Brochure

    Download | Share

    DOJOLVI
    Dosing Guide

    Information to discuss with your healthcare team on how to store, administer, and keep track of DOJOLVI doses

    DOJOLVI™ (triheptanoin) Dosing Guide

    Download | Share

    Daily
    Dosing Tracker

    A tool you can use to keep track of your DOJOLVI doses and notes for your healthcare team

    DOJOLVI™ (triheptanoin) Daily Dosing Tracker

    Download | Share

    UltraCare Patient
    Resource Guide

    An overview of the UltraCare Patient Services program and the resources available to you

    UltraCare® Patient Resource Guide

    Download | Share

    Materials Compatibility
    Reference

    A reference overview of materials that are compatible or incompatible to use with DOJOLVI

    DOJOLVI Materials Compatibility Reference

    Download | Share

    Descargar materiales de Dojolvi

    Folleto
    de DOJOLVI

    Obtenga información sobre LC-FAOD, DOJOLVI y la asistencia al paciente disponible

    Folleto de DOJOLVI® (triheptanoin)

    Descargar | Compartir

    Guía de dosificación
    de DOJOLVI

    Información sobre cómo almacenar, administrar y hacer un seguimiento de las dosis de DOJOLVI que puede conversar con su equipo de atención médica

    Guía de dosificación de DOJOLVI® (triheptanoin)

    Descargar | Compartir

    Guidance for Preparing DOJOLVI

    DOJOLVI® (triheptanoin) Dosing Videos

    These video segments demonstrate how to use the dosing components to prepare a DOJOLVI dose.

    Watch Videos

    Ver videos en Español.

    Guidance for mixing DOJOLVI into foods

    This video series will give a demonstration on how to thoroughly mix DOJOLVI with soft foods or drinks when taking orally. DOJOLVI should not be administered alone to avoid gastrointestinal upset.

    Watch Videos
    DOJOLVI® (triheptanoin) Mixing Videos

    Learn more and find your community

    Metabolic disease information and advocacy

    A scientific organization specifically dedicated to research and education about fatty acid oxidation disorders

    An advocacy organization working to educate and support patients with mitochondrial disease and their families

    Rare disease information and advocacy

    A center within the National Institutes of Health (NIH) that maintains a list of rare diseases and related terms to help people find reliable information about their disease

    An advocacy organization that provides support, education, and resources to the rare disease community

    A patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them

    A dedicated Ultragenyx team committed to providing rare disease education, resources, patient stories, and events

    Stay Informed

    Connect with us to get the latest information on LC-FAOD and/or DOJOLVI.

    *Required fields

    By submitting this form, you agree to allow Ultragenyx and its agents to collect the information provided and to be contacted directly by an Ultragenyx representative. Your information will not be used for any other purpose than for a representative to respond to your information request or for us to send you other DOJOLVI updates if you have registered to receive them.

    Ultragenyx will not sell, rent, or otherwise distribute your name and any personally identifiable information outside of Ultragenyx and its agents. Ultragenyx will only use your information in accordance with its Privacy Policy.

    What is DOJOLVI?

    DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

    IMPORTANT SAFETY INFORMATION

    What are the possible side effects of DOJOLVI?

    • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC), a solid plastic material. Monitor the feeding tube to make sure it is working properly.
    • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
    • The most common side effects of DOJOLVI are:
      • stomach (abdominal) pain
      • diarrhea
      • vomiting
      • nausea

    These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

    Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

    • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
    • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
    • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

    Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

    How should I take DOJOLVI?

    • See the detailed "Instructions for Use" at the end of the Patient Information Leaflet for instructions about how to mix and take DOJOLVI by mouth in soft foods or drinks or how to mix and give DOJOLVI through feeding tubes.
    • Take DOJOLVI exactly as your healthcare provider tells you.
    • Your healthcare provider may start you on a low dose of DOJOLVI and slowly increase your dose to help avoid side effects. If you are taking another medium chain triglyceride (MCT) product, stop taking the MCT before starting DOJOLVI.

    Please see full Prescribing Information, including the Patient Information Leaflet, for additional Important Safety Information.

    LESS -

    What is DOJOLVI?

    DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

    IMPORTANT SAFETY INFORMATION

    What are the possible side effects of DOJOLVI?

    • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC), a solid plastic material. Monitor the feeding tube to make sure it is working properly.
    • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
    • The most common side effects of DOJOLVI are:
      • stomach (abdominal) pain
      • diarrhea
      • vomiting
      • nausea

    These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

    Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

    • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
    • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
    • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

    Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

    How should I take DOJOLVI?

    • See the detailed "Instructions for Use" at the end of the Patient Information Leaflet for instructions about how to mix and take DOJOLVI by mouth in soft foods or drinks or how to mix and give DOJOLVI through feeding tubes.
    • Take DOJOLVI exactly as your healthcare provider tells you.
    • Your healthcare provider may start you on a low dose of DOJOLVI and slowly increase your dose to help avoid side effects. If you are taking another medium chain triglyceride (MCT) product, stop taking the MCT before starting DOJOLVI.

    Please see full Prescribing Information, including the Patient Information Leaflet, for additional Important Safety Information.

    MORE +