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take DOJOLVI
as prescribed.

How is DOJOLVI taken?

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View Dosing Guide

Always take DOJOLVI exactly as your LC-FAOD healthcare team advises

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Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

mct icon

If you are taking another medium-chain triglyceride (MCT) formulation, stop taking the MCT before starting DOJOLVI

syringe icon

Use an oral syringe or a measuring cup to measure the prescribed dose of DOJOLVI

do not icon

Do not mix or give DOJOLVI using containers, dosing syringes, or measuring cups made of polystyrene (a type of plastic that can be solid or foam) or polyvinyl chloride (PVC), a solid plastic material

mix icon

Mix or give DOJOLVI using containers, dosing components, or utensils made of materials such as stainless steel, glass, or high-density polyethylene (HDPE), polypropylene, low-density polyethylene (LDPE), polyurethane, and silicone (types of plastic materials)

daily dose icon

DOJOLVI should be taken at least 4 times a day with meals or snacks, and always mixed well with soft food or drink

drink icon

DOJOLVI can be mixed with the following soft food or drink:

  • Plain or artificially sweetened fat-free yogurt
  • Fat-free milk, formula, or cottage cheese
  • Whole-grain hot cereal
  • Fat-free, low-carbohydrate pudding, smoothies, applesauce, or baby food

The mixture may be stored for up to 24 hours in the refrigerator

Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC). Monitor the feeding tube to make sure it is working properly.

If you miss a dose, take the next dose as soon as possible. Take the following doses 3 to 4 hours apart. If it is not possible to take all the doses for the day, skip the missed dose.

Speak to your healthcare team and see the Instructions for Use included in the Patient Information Leaflet for more information.

HOW TO TAKE DOJOLVI:
A STEP-BY-STEP GUIDE

Si tiene alguna duda, pida a su equipo de salud que le muestre cómo medir la dosis prescrita.

If you have any questions, ask your healthcare team to show you how to measure your prescribed dose.

Choose video:

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Inserting the press-in bottle adapter

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MATERIALS TO USE
WITH DOJOLVI

Use this Materials Compatibility Reference to help you select appropriate materials to use with DOJOLVI

Download the Details

DOJOLVI® (triheptanoin) Materials Compatibility Reference

TRACKING DAILY DOSES

It’s important to stick with your treatment plan.
Frequent monitoring, especially as you begin taking DOJOLVI, can:

  • Help you adapt to and maintain your treatment plan
  • Help your healthcare team decide if any dosing modifications are needed

Track your doses in 3 easy steps.

1

 

2

 

3

1. DIVIDE

Divide the prescribed daily amount of DOJOLVI by at least 4 to determine each dose amount.

Ex: 56 mL/4 = 14 mL per dose

2. RECORD

Recording the exact time you take your doses will help you track medication for the day.

3. NOTE

Use the notes section to communicate important information to your healthcare team.

EXAMPLE: Not actual patient data; for illustrative purposes only.

DOJOLVI® (triheptanoin) Daily Dosing Tracker DOJOLVI® (triheptanoin) Daily Dosing Tracker DOJOLVI® (triheptanoin) Daily Dosing Tracker

Download the Daily Dosing Tracker to discuss with your healthcare team >

storing dojolvi

temperature icon

Store DOJOLVI upright at room temperature between 68° and 77°F (20° and 25°C)

do not freeze icon

Do not freeze DOJOLVI

expire icon

When the bottle of DOJOLVI has been opened, use within 9 months or by the expiration date on the bottle, whichever comes first

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Do not store product in containers made of polystyrene or polyvinyl chloride (PVC)

DOJOLVI® (triheptanoin) product image

dosing guide

Information to discuss with your healthcare team on how to store, administer, and keep track of DOJOLVI doses.

DOJOLVI® (triheptanoin) Brochure

Download the Guide

Stay Informed

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Ultragenyx will not sell, rent, or otherwise distribute your name and any personally identifiable information outside of Ultragenyx and its agents. Ultragenyx will only use your information in accordance with its Privacy Policy.

What is DOJOLVI?

DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

IMPORTANT SAFETY INFORMATION

What are the possible side effects of DOJOLVI?

  • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC), a solid plastic material. Monitor the feeding tube to make sure it is working properly.
  • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
  • The most common side effects of DOJOLVI are:
    • stomach (abdominal) pain
    • diarrhea
    • vomiting
    • nausea

These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

How should I take DOJOLVI?

  • See the detailed "Instructions for Use" at the end of the Patient Information Leaflet for instructions about how to mix and take DOJOLVI by mouth in soft foods or drinks or how to mix and give DOJOLVI through feeding tubes.
  • Take DOJOLVI exactly as your healthcare provider tells you.
  • Your healthcare provider may start you on a low dose of DOJOLVI and slowly increase your dose to help avoid side effects. If you are taking another medium chain triglyceride (MCT) product, stop taking the MCT before starting DOJOLVI.

Please see full Prescribing Information, including the Patient Information Leaflet, for additional Important Safety Information.

What is DOJOLVI?

DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

IMPORTANT SAFETY INFORMATION

What are the possible side effects of DOJOLVI?

  • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC), a solid plastic material. Monitor the feeding tube to make sure it is working properly.
  • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
  • The most common side effects of DOJOLVI are:
    • stomach (abdominal) pain
    • diarrhea
    • vomiting
    • nausea

These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

How should I take DOJOLVI?

  • See the detailed "Instructions for Use" at the end of the Patient Information Leaflet for instructions about how to mix and take DOJOLVI by mouth in soft foods or drinks or how to mix and give DOJOLVI through feeding tubes.
  • Take DOJOLVI exactly as your healthcare provider tells you.
  • Your healthcare provider may start you on a low dose of DOJOLVI and slowly increase your dose to help avoid side effects. If you are taking another medium chain triglyceride (MCT) product, stop taking the MCT before starting DOJOLVI.

Please see full Prescribing Information, including the Patient Information Leaflet, for additional Important Safety Information.