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take DOJOLVI as prescribed.

How is DOJOLVI taken?

 

Watch Preparation Videos

 

View Dosing Guide

 

Always take DOJOLVI exactly as your LC-FAOD healthcare team advises

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Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements

medium-chain tryglyceride icon

If you are taking another medium-chain triglyceride (MCT) product, stop taking the MCT before starting DOJOLVI

syringe icon

Use an oral syringe or a measuring cup to measure the prescribed dose of DOJOLVI

do not icon

Do not mix or give DOJOLVI using containers, oral syringes, or measuring cups made of polystyrene (a type of plastic that can be solid or foam) or polyvinyl chloride (PVC), a solid plastic material

mix icon

Mix or give DOJOLVI using containers, oral syringes, or measuring cups made of materials such as stainless steel, glass, or high-density polyethylene (HDPE), polypropylene, low-density polyethylene (LDPE), polyurethane, and silicone (types of plastic materials). After use, rinse materials and containers well with cold water and wipe dry

daily dose icon

Take DOJOLVI at least 4 times a day with meals or snacks, and always mix well with soft food or drink or medical food or formula before taking. Do not take DOJOLVI alone to avoid stomach upset

drink icon

If you take DOJOLVI by mouth, mix well with soft food or drink such as:

 
  • Plain or artificially sweetened fat-free yogurt
  • Fat-free milk, formula, or cottage cheese
  • Whole-grain hot cereal
  • Fat-free, low-carbohydrate pudding, smoothies, applesauce, or baby food

The unused DOJOLVI mixture may be stored for up to 24 hours in the refrigerator.

If not used within 24 hours, throw away (dispose of) the DOJOLVI mixture in the trash. Do not pour down the sink. Do not save for later.

If you give DOJOLVI by feeding tube, mix well with medical food or formula before giving by a feeding tube y-connector, or feeding tube extension set.

Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC). Check the feeding tube to make sure it is working properly and not breaking down.

If you miss a dose, take the next dose as soon as possible. Take the following doses 3 to 4 hours apart. If it is not possible to take all the doses for the day, skip the missed dose.

Speak to your healthcare team and see the Instructions for Use included with the Patient Information for more information.

Photo of Daniel, living with carnitine palmitoyltransferase II (CPT II) definicency

“DOJOLVI is part of my daily routine.
I take DOJOLVI 4 times a day with meals and snacks up until I go to bed.”

Discover Patient Stories

Daniel Living with CPT II, a type of LC-FAOD

HOW TO PREPARE DOJOLVI

Estos segmentos de video muestran cómo usar los componentes de dosificación para preparar una dosis de Dojolvi. Si tiene alguna duda, pida a su equipo de salud que le muestre cómo medir la dosis prescrita.

These video segments demonstrate how to use the dosing components to prepare a DOJOLVI dose.

If you have any questions, ask your healthcare team to show you how to measure your prescribed dose.

Choose video:

Ver videos en Español

Descargar la guía de dosificación
View videos in English

Inserting the press-in bottle adapter

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HOW TO MIX DOJOLVI

These videos demonstrate how to properly mix DOJOLVI into compatible soft foods or drinks when preparing to take the medication orally.

If you have any questions, ask your healthcare team how to properly prepare DOJOLVI.

To avoid gastrointestinal upset, thoroughly mix or emulsify DOJOLVI into the appropriate amount of soft food or drink as instructed by your healthcare provider. For instructions on how to prepare for use with a feeding tube, please refer to the Instructions for Use.

If the DOJOLVI mixture is not used within 24 hours, throw away (dispose of) in the trash. Do not pour down the sink. Do not save for later.

See the DOJOLVI® (triheptanoin) full Prescribing Information, including Patient Information, for additional preparation and administration information.

Inserting the press-in bottle adapter

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MATERIALS TO USE
WITH DOJOLVI

Use this Materials Compatibility Reference to help you select appropriate materials to use with DOJOLVI

 

Download the Details

 
DOJOLVI® (triheptanoin) Materials Compatibility Reference

TRACKING DAILY DOSES

It’s important to stick with your treatment plan.
Frequent monitoring, especially as you begin taking DOJOLVI, can:

  • Help you adapt to and maintain your treatment plan
  • Help your healthcare team decide if any dosing modifications are needed

Track your doses in 3 easy steps.

1

2

3

1. DIVIDE

Divide the prescribed daily amount of DOJOLVI by at least 4 to determine each dose amount.

Ex: 56 mL/4 = 14 mL per dose

2. RECORD

Recording the exact time you take your doses will help you track medication for the day.

3. NOTE

Use the notes section to communicate important information to your healthcare team.

EXAMPLE: Not actual patient data; for illustrative purposes only.

DOJOLVI® (triheptanoin) Daily Dosing Tracker with amounts filled in DOJOLVI® (triheptanoin) Daily Dosing Tracker with time taken filled in DOJOLVI® (triheptanoin) Daily Dosing Tracker with notes filled in

Download the Daily Dosing Tracker to discuss with your healthcare team >

storing dojolvi

temperature icon

Store DOJOLVI upright at room temperature between 68° and 77°F (20° and 25°C)

do not freeze icon

Do not freeze DOJOLVI

expire icon

When the bottle of DOJOLVI has been opened, use within 9 months or by the expiration date on the bottle, whichever comes first

caution icon

Do not store product in containers made of polystyrene or polyvinyl chloride (PVC)

DOJOLVI® (triheptanoin) product image

dosing guide

Information to discuss with your healthcare team on how to store, administer, and keep track of DOJOLVI doses.

DOJOLVI® (triheptanoin) Brochure
 

Download the Guide

 

Stay Informed

Connect with us to get the latest information on LC-FAOD and/or DOJOLVI.

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By submitting this form, you agree to allow Ultragenyx and its agents to collect the information provided and to be contacted directly by an Ultragenyx representative. Your information will not be used for any other purpose than for a representative to respond to your information request or for us to send you other DOJOLVI updates if you have registered to receive them.

Ultragenyx will not sell, rent, or otherwise distribute your name and any personally identifiable information outside of Ultragenyx and its agents. Ultragenyx will only use your information in accordance with its Privacy Policy.

What is DOJOLVI?

DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

IMPORTANT SAFETY INFORMATION

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of DOJOLVI?

  • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC). Check the feeding tube to make sure it is working properly and not breaking down.
  • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
  • The most common side effects of DOJOLVI include:

These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

Please see full Prescribing Information, including Patient Information, for additional important safety information and instructions for use.

What is DOJOLVI?

DOJOLVI is a prescription medicine used to treat long-chain fatty acid oxidation disorders (LC-FAOD) in children and adults.

IMPORTANT SAFETY INFORMATION

Before taking DOJOLVI, tell your healthcare provider about all of your medical conditions, including if you:

  • are pregnant or plan to become pregnant. It is not known if DOJOLVI will harm your unborn baby. Pregnancy Safety Study: There is a pregnancy safety study for women who take DOJOLVI during pregnancy. The purpose of this study is to collect information about your health and your baby's health. You can talk to your healthcare provider or contact 1-888-756-8657 to enroll in this study or get more information.
  • are breastfeeding or plan to breastfeed. It is not known if DOJOLVI passes into breast milk. Talk to your healthcare provider about the best way to feed your baby if you take DOJOLVI.
  • are taking a pancreatic lipase inhibitor, such as orlistat, as it may affect how well DOJOLVI works.

Tell your healthcare provider about all the medicines you take, including prescription and over-the-counter medicines, vitamins, and herbal supplements.

What are the possible side effects of DOJOLVI?

  • Feeding tube problems. Feeding tubes may not work as well or stop working over time when taking DOJOLVI. Do not use DOJOLVI in feeding tubes made of polyvinyl chloride (PVC). Check the feeding tube to make sure it is working properly and not breaking down.
  • Intestinal absorption problems in patients with pancreatic insufficiency. If you have pancreatic insufficiency, consult with your healthcare provider as it may affect how well DOJOLVI works.
  • The most common side effects of DOJOLVI include:

These are not all the possible side effects of DOJOLVI. Call your healthcare provider for medical advice about side effects. You may report side effects to Ultragenyx Pharmaceutical Inc. at 1-888-756-8657 or FDA at 1-800-FDA-1088.

Please see full Prescribing Information, including Patient Information, for additional important safety information and instructions for use.